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台海网10月19日讯据福州晚报报道，琪琪出生于9月16日，台风莫兰蒂袭击福清的第一个晚上。医院出生后，她的越南籍妈妈还来不及沉浸在获得小生命的喜悦中，就发现女儿不对劲，出现了“气促、呻吟，呕吐腹胀”等症状，而且触摸孩子也没有反应。紧急之下，琪医院新生儿科急救。
女婴琪琪因患有罕见的“先天性胃壁肌层缺损”，上半胃没有肌肉，仅剩两层薄膜。薄膜很快坏死，一喝奶，奶水就全跑进腹腔，肚胀如鼓生命垂危。奇迹的是，在出生26小时后，她被紧医院，切除了半个坏死的胃，如今已出院，能正常进食排泄。
入院后，经过体检医生发现，琪琪生命体征不稳，呼吸困难，面色青灰，腹胀如鼓，潮红及青筋外露，四肢冰凉，频繁呕吐含血性胃内容物......新生儿科（NICU）主任章丽燕及科室医护人员赶紧对她进行急救，并紧急请外科会诊。
儿外科的黄圣余副主任医师查看琪琪的病情后，诊断上消化道穿孔伴弥漫性腹膜炎，建议急诊剖腹探查手术。
胃壁有3层肌肉她一层也没有
手术于当晚9点准时开始，黄圣余医生主刀。他从医将近20年，有一绝技，十多年来在业余时间用双手练习钢笔字，目的是为了让双手更加灵活，以便提高手术的精准性和速度，减少患者的痛苦。
“腹腔被打开时，一股气体喷出，整个肚子就像皮球泄了气。”黄圣余说，琪琪的整个腹腔充满了胆汁、奶瓣及坏死样物，而清理之后，他惊讶发现琪琪的“胃破了”——琪琪的整个上半胃几乎发黑坏死，近端累及贲门，呈现出一个巨大的空洞，洞口不断有胆汁及胃液溢出。
原来，琪琪患有非常罕见的疾病“先天性上半胃壁肌层缺损”。“造成琪琪胃穿孔的原因，正是因为穿孔的部位没有肌肉，只有一层浆膜层和粘膜（正常人的胃壁有3层肌肉）。”黄圣余介绍，琪琪出生时曾窒息，而这两层薄膜或因此缺血坏死，之后琪琪进食，奶水冲破薄膜，全部流入腹腔。
为保命切除肌层缺损坏死上半胃
“胃部这么大的穿孔我也是头次见。”黄圣余介绍，在他曾经做过的胃穿孔手术中，最大的穿孔也就2厘米左右，而琪琪的接近4厘米。加之，胃穿孔死亡率很高，在胃穿孔后6个小时内手术存活只有46%，胃穿孔12小时内手术存活率是25%，而超过24小时存活率极低，当下他的心就咯噔了。
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